Focus Area 5

Patient & Stakeholder Engagement

Bringing patients, providers, industry, and government into evidence-informed healthcare decisions that reflect the needs and values of all Ethiopians.

Overview

Decisions That Reflect What Matters

The best HEOR evidence is only useful if it reaches the people who make healthcare decisions — and if those decisions genuinely reflect the priorities of patients and communities. Patient and stakeholder engagement is how HEOR stays grounded in reality.

In Ethiopia, meaningful engagement of patients, caregivers, providers, policymakers, and industry in healthcare decisions is an emerging priority. The chapter works to build the methods and platforms for inclusive, evidence-informed dialogue across these groups.

This includes patient-preference research — understanding what patients value in their treatments and outcomes — as well as multi-stakeholder forums that bring government, academia, civil society, and the private sector into shared decision-making processes.

Stakeholders We Engage

  • · Patients and caregivers
  • · Healthcare providers (clinicians, pharmacists, nurses)
  • · Ministry of Health and regional health bureaus
  • · Ethiopian Food and Drug Authority (EFDA)
  • · Pharmaceutical Fund and Supply Agency (EPSS)
  • · Academic and research institutions
  • · Pharmaceutical and medical-device industry
  • · ISPOR HQ and Africa Network
Our Work

Activities in This Focus Area

UHC Day Forum

The chapter's UHC Day Forum (Gondar, December 2018) brought together 25 participants from government, regulators, academia, hospitals, and students to develop a multi-partner shortage-reporting system — a model for stakeholder co-production of health system solutions.

Patient-Preference Research Workshop

A planned workshop on patient-preference research methods — including discrete-choice experiments and stated-preference surveys — to help Ethiopian researchers incorporate patient perspectives into HEOR.

Multi-Stakeholder Forums

Convening government, industry, academia, and civil society around shared HEOR and HTA questions — creating spaces for evidence-informed dialogue on Ethiopia's healthcare priorities.

Help Shape Evidence-Informed Healthcare

Join the chapter and contribute to patient and stakeholder engagement in Ethiopian HEOR.